5th Annual Sickle Cell Caregivers Summit

This year’s Caregivers Summit is rooted in a moment of deep vulnerability and shared truth. It began with one caregiver’s courageous story facing a personal health scare while caring for her adult children and opened the door to an outpouring of experiences from others who had similarly placed their well-being on hold for the sake of those they love.

From this honest and heartfelt discussion came a unified theme: The Heart of a Caregiver: Balancing Mental Wellness, Advocacy, and Legacy.

This theme recognizes the full humanity of the caregiver, the fierce advocate, the emotional anchor, the planner, and the protector.  It challenges us to care for the one who cares for everyone else. It also speaks to the critical need for both present-day support and future-focused planning.

Summit Highlights Will Include:

  - A spotlight on the caregiver whose story inspired this year’s theme

  - Real talk on burnout,…